03.18.15

I know and I can feel you. You're tired. You're losing hope. You don't want to drink your medicines anymore. But I'm telling you, you must keep the faith. You need to stay strong and prove that lupus can't win this battle. And I know that you can do it. :) 

Built to Survive

Achy and swollen joints? Unexplained fever? Prolonged fatigue? Skin rash? Hair loss? Sensitivity to sun and other light? I know some of you already coped up with Lupus, while some are still in the stage of accepting SLE. So I can't blame a person who have this condition and have negative thoughts on his/her life because I've been through the dark stage of Lupus. It will bring you the thought on how will you spend your day, or the thought of how will you be productive if you have the said condition. 

Having this condition is not easy. Every lupus patient experienced difficulties, sufferings and chronic pain emotionally and physically. And in order to surpass this, acceptance is a must. You have to deal with pain whether it is acute or chronic, accept the fact that there are limitations for every action, and you need to take different medicines. Remember that Lupus is not curable but treatable. There is no specific medicine in order to remove Lupus in our system but if we take our medicines religiously and we follow the doctor’s order, there will be small chance in having lupus flares. Just like what I told you before that aside from doctors and medicines, having faith and having belief in recovery is very important. Think positive thoughts that you will be healed and someday hopefully, there will be a cure for this. Promise yourself that you will fight each day with a smile and not to give up for lupus fighters were BUILT TO SURVIVE.  

#LHandSign for Lupus Awareness

"..but you don't look sick, you look healthy and fine."

We usually hear these words from other people. But we want them to realize that not every disability uses a wheelchair, not all disabilities/illnesses are visible. 

So here I am..supporting lupus awareness by  throwing my LHandSign for the first time. :) 

I know, this is not an easy challenge but giving up is never an option. We must keep fighting lupus for lupus doesn't define who we are. We still have a choice to be happy, to live our lives to the fullest. If you need someone to talk to.. I'm here. You are not alone. 

Sending my hugs & kisses for you my dear lupus fighters! :)

Lupus and Ovarian Cyst

Hi there my dear lupies! :)))) Been through the darkness of life these past few days... Another challenge. Another test of faith. 

Last week, I texted my doctor about the pain in my right pelvis, lower back, and can feel inguinal pain too. I also noticed that there is swelling or bulge on my anterior abdominal wall. I complained this pain when I was in  third year college. My doctor suspected hernia so he referred me to a surgeon. But the surgeon ruled out hernia and said it was peripheral neuropathy and ordered me to take vitamin B. 

On second week of June 2014, I felt severe pain.. severe pain.. severe pain. Same part. But the pain was really severe and I can also feel pain on other parts of my body.  So I texted my doctor. Again, he asked me to consult to a surgeon for he is again suspecting a hernia. Again, the hernia was ruled out. The surgeon ordered CT scan to confirm his diagnosis of Abdominal Wall Mass t/c Fibroma.

It was my first time to experience this. In fact, I enjoyed the procedure itself except for the contrast that was inserted thru IV and rectal which made me uncomfortable before the procedure. Luckily, my friend Gade assisted me so I'm not that anxious throughout the procedure.

The next day... I got the result.. and findings showed that it may be ovarian cyst. So for now, we're only doing "watchful waiting". Will monitor myself for 6 months then will have ultrasound to know if there are changes in the cyst. For now, we're praying that it is only a functional harmless cyst and not a pathological one. 

Yes, I've been through the darkness of life but I realized that life is filled with more light than darkness. I want to thank my family especially my Mom, aunties, uncles, cousins, J's family and of course J, and my friends who never fail to remind me not to give up and letting me feel that I am loved. 

At the age of 23, I knew what it feels like to have Systemic Lupus Erythematosus. This diagnosis is only one of the thousands illnesses I may have. For in SLE, we must accept the fact that we are vulnerable to different illnesses BUT you must also accept that belief in recovery and living a positive life can lead to healthy and happy living. So, it doesn't mean that you have SLE, you will just lose hope. There will be always light. 

Just believe.

Btw, I can endure all the pain brought by SLE but not the feeling of seeing my family unhappy because of my condition.. so for them, I will smile, I will stay strong, I will be brave. I will never give up.

Sunday Thoughts

Secret to have healthy life - be happy!

It's not always about medications, doctors, eating what is right, doing what is right. Happiness is the key to have less stressful life. Spend time with friends and family. And PRAY. Pray because we should thank God that He allows us to wake up every morning and always gives us unlimited chances to enjoy and appreciate His blessings. Whatever problems, illness, disease, painful symptoms you're experiencing right now.. just hold on, never give up. Remember let us be thankful that we can still feel pain because pain reminds us that we are alive.. that we are humans. Always look on the brighter side of everything. Life is not perfect but it is in our hands on how we can spend our life meaningful. 

HAVE A NICE AND MEANINGFUL DAY MY FELLOW FIGHTERS. :)

I'm Back! :)

Hello my dear Lupus fighters :) I miss my blog. I miss writing here in my blog.
FINALLY.. had the chance to write again.
Been into remission and flares of Lupus. But here I am. Still have the ability to manage, to fight, to believe.. believing that I can.
I know you can do it also. Never give up. I'm here for you. ♥

-happylupuslife